Ron was first diagnosed with a neuromuscular disorder about 18 months ago. It has progressed rapidly and he was referred to Mayo Clinic in Minnesota. Following three weeks of extensive tests, the preliminary diagnosis revealed a motor neuron disease: ALS (amyotrophic lateral sclerosis).
Not Much Fun
There are but a handful of motor neuron diseases, the most famous of which is ALS. Amyotrophic Lateral Sclerosis. That is the preliminary diagnosis. Many such disorders are often diagnosed via exclusion– rule out everything else.
About 10-percent of people diagnosed with ALS actually have something different; disorders that mimic ALS or other motor neuron disorders. The lead neurologist tested for other causes but a disorder than mimics ALS was not been found.
In late December I set up a GoFundMe project with a modest goal to help cover some of Ron’s travel and ongoing expenses. All of us at Mac360 thank those who have contributed, but as of now, the total remains short of the original objective. Ron and his wife have returned home. Mayo Clinic has requested they return later this year.
I will leave the donation option open until the end of February, so please visit the GoFundMe page and contribute what you can. Every donation will help and be appreciated.
UPDATE: ALS can quickly become disabling. Ron fell down a few times during the first few days at Mayo Clinic, and fell down again during an autonomic reflex tilt table test and suffered a compression fracture in his lower back. I do not have good news to report.
To help with some of the ongoing expenses and perhaps a future visit to Mayo Clinic, Ron and members of the Apple Villagers group of bloggers have agreed to put a number of our most valuable domain names up for sale. Simply put, we are sacrificing the Apple Villagers’ websites and our public devotion to all things Apple to help ensure that Ron can meet mounting expenses for care.
Otherwise, if you have an interest in domain names, this is a good list of attractive names and all the proceeds go to Ron. Many will look familiar. As members of the Apple Villagers group, we are willing to sacrifice our hobby to help a close friend.
Ron handled all the backend server setup and maintenance, so at some point soon most of the websites will close down.
- mac360.com, mac360.net, mac360.org, mac360.tv
- mackillertips.com, mackillerapps.com, ipadkillertips.com, ipadkillerapps.com, iphonekillertips.com, iphonekillerapps.com, watchkillertips.com
- siriandme.com, siriandme.org
- voxapple.com, voxapple.tv
- appopotamus.org, appopotamus.tv
- darlingbombshell.org, darlingbombshell.net
Domain name brokers say such names are worth $1,000 to $2,000 or more for single domains, and more for domain name packages. Obviously, Mac360.com would be the last to go and is worth the most. If you have an interest, please contact me for more information.
— Jack Miller, St. Louis, MO
A Little History
Regular readers of Mac360 may know that Ron and Tera started Mac360 as a simple blogger project built on a gooseneck iMac more than 15 years ago. Since then, Mac360 has grown steadily in readers and writers. Ron has helped dozens of bloggers set up their own sites and hosted them for free on his servers. They’re called the Apple Villagers.
All of us agree that Ron has been our inspiration through the years; the mature voice who kept us together, the experienced manager who kept us motivated, the solver of problems, personal and technical. He taught us the meaning of community and caring. He is part of our community, too, and we want to help out in a time of need.
Please visit the GoFundMe page and contribute what you can, or, if you’re more adventurous, consider one or more of the available domains. We appreciate your help.
— Jack Miller, St. Louis, MO